Remi: In My Own Words

When I reflect on my journey with Children’s Colorado, three moments stand out above all others: my first treatment, my last treatment, and the unforgettable bell-ringing ceremony that marked the end of my battle. Each of these milestones felt monumental, not just because they were steps in my medical journey, but because they represented everything I had endured and everything I had overcome.

The first treatment was daunting. It was the beginning of an unknown path filled with fear and uncertainty. But as challenging as that day was, it was also the start of something powerful—a journey where I learned just how strong I could be. Then came my last treatment, a day filled with mixed emotions. The fight had been so long and a sense of relief rushed over me as soon as we exited the hospital. It wasn’t just relief and elation to finally be rid of the disease that had affected my life so much; it was the realization that I had made it through the storm. And finally, the bell-ringing ceremony—a day that I had dreamed of, fought for, and pushed through every challenge to reach. Children’s Colorado allowed us to have the best bell ringing ceremony we could have hoped for. That sound was not just the end of treatment; it was the beginning of a new chapter filled with hope and possibility. And to have many family members and friends present for this new beginning made the occasion even sweeter and more meaningful for me and everyone present. 

Throughout this journey, there were people who made the impossible feel possible. After my first surgery, my nurse Brenda became my anchor. She was more than just a caregiver; she was a friend in a moment of need. Brenda’s kindness went beyond medicine and surgery. We had long talks about life, dreams, and everyday things—distractions that felt like a lifeline when all I wanted was to feel normal, even just for a moment. Her warmth and care reminded me that I wasn’t alone, and that made all the difference. As treatments began, the clinic became a second home. Ms. Kristi greeted us each day as we checked into the clinic with her bright smile and genuine questions about school and life. Nurse Kimmy turned the routine of intake into something almost enjoyable, exchanging jokes that momentarily eased my anxiety about the treatment ahead. Dr. Kelly Maloney stood out not only as a skilled physician but as someone who truly cared. From the start, she was thorough, patient, and encouraging. Her questions about basketball reminded me that I was more than a patient—I was still me. Her encouragement lifted not just me but my family, offering a sense of hope and reassurance. Equally important to our experiences was nurse coordinator Cali. Always approachable and attentive, she guided us through the overwhelming maze of logistics with patience and care, ensuring we never felt lost in the process.

These extraordinary people transformed what could have been a cold and clinical experience into one filled with compassion and humanity. Their kindness taught me that even in the toughest times, connection and care have the power to heal in ways medicine alone cannot.

When I think back on everything, I am most proud of my perseverance, mental toughness, and attitude. These are the things that kept me standing when it would have been easier to fall. Through each treatment, each day of fatigue and pain, I held on to the belief that I could get through it. And I did. I learned that strength isn’t just about physical endurance—it’s about staying hopeful, staying positive, and refusing to give up, no matter how hard it gets.

Looking ahead, my hopes and dreams are simple: to live a happy and somewhat normal life. I don’t want this experience to define me, but rather to be a chapter that strengthened my character and shifted my perspective on the world. I want to carry forward the lessons I’ve learned—to appreciate the little things, to stay resilient, and to always find hope, even in the toughest times.

That’s why I believe it’s so important for people to give to Children’s Colorado. From my own experience, I know that the care, dedication, and sincerity of the staff—combined with access to state-of-the-art technology and treatments—made this journey as manageable as it could be for me and my family. It’s because of places like Children’s Colorado that kids like me have a fighting chance. I encourage everyone to continue supporting this incredible hospital so that every child can receive the exceptional care they deserve, just like I did.

Children’s Colorado wasn’t just a place of treatment; it was a place of hope, strength, and healing. And for that, I am forever grateful.